Donation based workout supporting the Cure Sanfilippo FoundationWe will be hosting a donation based workout on the first Saturday of the month in honor of Spencer. At just 2.5 years old, Spencer was diagnosed with a life limiting disease called Sanfilippo Syndrome Type A. This degenerative disease has been likened to childhood Alzheimer’s and will eventually take her ability to speak, move and grow into adulthood.
All funds will go directly to the Cure Sanfilippo Syndrome Foundation and will support research and efforts to find a cure for these amazing children. https://curesanfilippofoundation.org/
From Spencer’s Parents:
“We have been lucky enough to know and love Charis for almost a decade and train with her to this day. She has been a rock through this whole process and loves our daughter dearly. We are so thankful to her for hosting this and you for contributing. As any parent, we are willing to do anything to support our daughter and give her the best life possible and this foundation is doing everything in their power to advance the treatments available to our kids. Thank you again – it means more than you could know.”